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New Podcasts – Exercise in Neuromuscular Disorders – Lived experience in adults

November 13, 2024 by Kellie McCallum Leave a Comment

Two new podcasts launched as part of AHP Neuromuscular Hub

Physical activity & exercise when living with a neuromuscular condition

Jo Reffin, Clinical Lead  Neuromuscular Physiotherapist from King’s College Hospital NHS Foundation Trust is in conversation with Deri who describes his experience , the ups and downs of exercise and activity whilst living with a diagnosis of Inclusion body myositis (IBM) over time.

Exercise & Activity: Lived example: Facioscapulohumeral muscular dystrophy (FSHD)

Anna interviews Mel alongside her specialist physiotherapist, Jo Reffin from Kings College, London. Mel has facioscapulohumeral muscular dystrophy (FSHD) and was diagnosed 10 years ago. here she gives valuable insights into keeping active and motivated whilst living with a progressive disorder.

 

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