This first document below has been developed in collaboration with Muscular Dystrophy UK, people living with muscle wasting conditions and clinicians who specialise in neuromuscular conditions.  The aim of the document is to provide information to better support people to manage their fatigue. The document has been developed with multiple conditions in mind and advice is therefore general in nature.

As a guide for individuals – the recommendation is for them to work through this document with their healthcare team. As this is a fairly long document, you may choose to go through it one section at a time with your patients. Worksheets at the end are designed to help increase understanding and integrate fatigue management into daily life.

MDUK: Fatigue management for people with neuromuscular conditions.

How to manage your energy levels; Practical advice for people recovering from illness or managing long-term health conditions. Occupational Therapy Guide to conserving energy (Not NMD specific but useful)

https://www.rcot.co.uk/conserving-energy

SMN to managing fatigue in NMD

Building Bridges – Managing Fatigue – Patient Advice

Top tips for managing fatigue and fatigue at work