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Pod NMD

  • Who We Are
    • Our Team & Governance
    • Partnerships & Collaborations
  • Resources by Condition
    • Becker Muscular Dystrophy (BMD)
    • Congenital Muscular Dystrophy (CMD)
    • Congenital Myasthenia Syndrome (CMS)
    • Congenital Myopathies (CM)
    • Duchenne Muscular Dystrophy (DMD)
    • General Neuromuscular Diseases (NMD)
    • Glycogen Storage (GSD)
    • Inherited Neuropathies
    • Limb Girdle Muscular Dystrophy (LGMD)
    • Myotonic Dystrophy (DM1)
    • Spinal Muscular Atrophy (SMA)
  • Assessment
    • Motor Performance
    • PROMS
    • Timed Tests
    • Additional Considerations
    • Assessing Babies and Young Children
    • Summary of Function Scales
  • Managing NMD
    • Staying Active & Stretches
    • Managing Other Symptoms
    • Multidisciplinary Care
    • Occupational Therapy
  • CPD Resources
  • Podcasts
    • Duchenne Muscular Dystrophy (DMD)
    • Inherited Neuropathies
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Partnerships & Collaborations

/ Who We Are / Partnerships & Collaborations

Partnerships & Collaborations

POD-NMD is incredibly proud and honoured to work with a huge number of partners and collaborators worldwide…

We collaborate with organisations and leading experts across the globe on a wide range of topics. As best practice for neuromuscular patients is at the heart of our mission and everything we aim to achieve, we are grateful for the support and expertise that the following organisations and therapists provide: 

Lindsay Alfano
USA

Marina Di Marco
UK

Dr Meredith James
UK

Dr Linda Lowes
USA

Robert Muni-Lofra
UK

Aleks Pietrusz
UK

Lindsey Pallant
UK

Hayley Ramjatten
UK

Dr Gita Ramdharry
UK

Dr Kristy Rose
Australia

Lindsey Pallant
UK

Dr Ulla Werlauf
Denmark

North Star Network

More info

SMA REACH UK

More info

Muscular Dystrophy UK

More info

Life Science Industry

Our Life Science Industry partners’ generosity and support of the POD-NMD e-learning LMS platform and digital resource developments ensure that the best standards of care are shared and delivered to neuromuscular patients and their healthcare professionals across the globe. 

Our Life Sciences Industry partners include:  

Roche

More info

PTC Therapeutics

More info

Sarepta Therapeutics

More Info

More information on TREAT-NMD partnerships and collaborations can be found here.

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  • Who We Are
    • Our Team & Governance
    • Partnerships & Collaborations
  • Resources by Condition
    • Becker Muscular Dystrophy (BMD)
      • Intro to BMD
    • Congenital Muscular Dystrophy (CMD)
      • Intro to CMD
      • Key Management: CMD
      • Key Assessment Guide: CMD
    • Congenital Myasthenia Syndrome (CMS)
      • Intro to CMS
      • Key Management: CMS
      • Key Assessment Guide: CMS
    • Congenital Myopathies (CM)
      • Intro to CM
      • Key Management: CM
      • Key Assessment Guide: CM
    • Duchenne Muscular Dystrophy (DMD)
      • Intro to DMD
      • Key Management: DMD
      • Key Assessment Guide: DMD
    • General Neuromuscular Diseases (NMD)
      • Intro to NMD
      • Key Management: NMD
      • Key Assessment Guide: NMD
    • Glycogen Storage (GSD)
      • Intro to GSD
      • Key Management: GSD
      • Key Assessment Guide: GSD
    • Inherited Neuropathies
      • Intro to Inherited Neuropathies
      • Key Management: Inherited Neuropathies
      • Key Assessment Guide: Inherited Neuropathies
    • Limb Girdle Muscular Dystrophy (LGMD)
      • Intro to LGMD
      • Key Management: LGMD
      • Key Assessment Guide: LGMD
    • Myotonic Dystrophy (DM1)
      • Intro to DM1
      • Key Management of DM1
      • Key Assessment Guide: DM1
    • Spinal Muscular Atrophy (SMA)
      • Intro to SMA
      • Key Management: SMA
      • Key Assessment Guide: SMA
  • Assessment
    • Motor Performance
      • NSAA
      • PUL 2.0
      • EK2
      • NSAD
      • RHS
      • HFMSE
      • RULM
      • ATEND
      • CHOP-INTEND
      • MFM
      • GMFM
      • TANS
      • CMS Specific Assessments
      • QMFT
      • GSGC
    • PROMS
      • ACTIVLIM
      • Egen Klassifikation
      • PROM-Upper
      • Myasthenia Gravis
      • Pompe R-PAct
      • Sleepiness
      • Satisfaction with Orthotic Provision
      • QOLgNMD
      • DMD-QoL
    • Timed Tests
      • Timed 10 Metre Walk/Run
      • Timed Rise From Floor
      • 6 Minute Walk Test
      • Timed Up & Go
      • 100 Metre Walk/Run Test
    • Additional Considerations
      • Respiratory Function
      • Pain
      • Posture & Spine
      • Strength
      • Quality of Life
      • Activity and Fatigue
      • Range of Motion
    • Assessing Babies and Young Children
      • Normal/Abnormal Development
      • Developmental Milestones
      • HINE
      • AIMS
      • BSID
      • CHOP-INTEND for Infants
    • Summary of Function Scales
      • Brooke Upper Extremity Grade
      • Vignos Lower Extremity Grade
      • DMDSAT
      • SOFT
  • Managing NMD
    • Staying Active & Stretches
      • Staying Active
      • Stretches
      • Jaw Tightness (Trismus)
      • Scoliosis Management
    • Managing Other Symptoms
      • Falls Management
      • Fatigue Management
      • Pain Management
      • Respiratory Management
      • Continence Care
      • Oedema Management
    • Multidisciplinary Care
      • Orthopaedic Management
      • Additional Multidisciplinary Management
      • Orthotics
      • Equipment Ideas
    • Occupational Therapy
      • Overview of Role
      • Home Adjustments
      • Mobility Aids and Wheelchairs
      • Support for Sitting
      • Mobile Arm Supports
      • Robotics
  • CPD Resources
  • Podcasts
    • Duchenne Muscular Dystrophy (DMD)
    • Inherited Neuropathies
    • Limb Girdle Muscular Dystrophy (LGMD)
    • Other
  • Search