HRQL questionnaire specifically designed for slowly progressive NMD patients. It is composed of two general items and 24 items classified in three domains: (1) “Impact of Physical Symptoms,” (2) “Self-perception” and (3) “Activities and Social Participation.” The QoL–NMD is short enough to be used in clinical practice (26 items)
Construction of a Quality of Life Questionnaire for slowly progressive neuromuscular disease – Dany et al 2015