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Key Assessment Guide: SMA

/ Resources by Condition / Intro to SMA / Key Assessment Guide: SMA

Key Assessment Guide for Spinal Muscular Atrophy

The CURESMA Clinical Trial Assessment Guide contains very comprehensive summary of Outcome measures used in SMA Trials and contains links to measures of function, strength and endurance and some patient reported outcome measures.

Resources

You will find the information on ‘Common Motor Performance Assessments’ of use to SMA.

SMA Reach provides further information on SMA.

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  • Who We Are
    • Our Team & Governance
    • Partnerships & Collaborations
  • Resources by Condition
    • Becker Muscular Dystrophy (BMD)
      • Intro to BMD
    • Congenital Muscular Dystrophy (CMD)
      • Intro to CMD
      • Key Management: CMD
      • Key Assessment Guide: CMD
    • Congenital Myasthenia Syndrome (CMS)
      • Intro to CMS
      • Key Management: CMS
      • Key Assessment Guide: CMS
    • Congenital Myopathies (CM)
      • Intro to CM
      • Key Management: CM
      • Key Assessment Guide: CM
    • Duchenne Muscular Dystrophy (DMD)
      • Intro to DMD
      • Key Management: DMD
      • Key Assessment Guide: DMD
    • General Neuromuscular Diseases (NMD)
      • Intro to NMD
      • Key Management: NMD
      • Key Assessment Guide: NMD
    • Glycogen Storage (GSD)
      • Intro to GSD
      • Key Management: GSD
      • Key Assessment Guide: GSD
    • Inherited Neuropathies
      • Intro to Inherited Neuropathies
      • Key Management: Inherited Neuropathies
      • Key Assessment Guide: Inherited Neuropathies
    • Limb Girdle Muscular Dystrophy (LGMD)
      • Intro to LGMD
      • Key Management: LGMD
      • Key Assessment Guide: LGMD
    • Myotonic Dystrophy (DM1)
      • Intro to DM1
      • Key Management of DM1
      • Key Assessment Guide: DM1
    • Spinal Muscular Atrophy (SMA)
      • Intro to SMA
      • Key Management: SMA
      • Key Assessment Guide: SMA
  • Assessment
    • Motor Performance
      • NSAA
      • PUL 2.0
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      • CHOP-INTEND
      • MFM
      • GMFM
      • TANS
      • CMS Specific Assessments
      • QMFT
      • GSGC
    • PROMS
      • ACTIVLIM
      • Egen Klassifikation
      • PROM-Upper
      • Myasthenia Gravis
      • Pompe R-PAct
      • Sleepiness
      • Satisfaction with Orthotic Provision
      • QOLgNMD
      • DMD-QoL
    • Timed Tests
      • Timed 10 Metre Walk/Run
      • Timed Rise From Floor
      • 6 Minute Walk Test
      • Timed Up & Go
      • 100 Metre Walk/Run Test
    • Additional Considerations
      • Respiratory Function
      • Pain
      • Posture & Spine
      • Strength
      • Quality of Life
      • Activity and Fatigue
      • Range of Motion
    • Assessing Babies and Young Children
      • Normal/Abnormal Development
      • Developmental Milestones
      • HINE
      • AIMS
      • BSID
      • CHOP-INTEND for Infants
    • Summary of Function Scales
      • Brooke Upper Extremity Grade
      • Vignos Lower Extremity Grade
      • DMDSAT
      • SOFT
  • Managing NMD
    • Staying Active & Stretches
      • Staying Active
      • Stretches
      • Jaw Tightness (Trismus)
      • Scoliosis Management
    • Managing Other Symptoms
      • Falls Management
      • Fatigue Management
      • Pain Management
      • Respiratory Management
      • Continence Care
      • Oedema Management
    • Multidisciplinary Care
      • Orthopaedic Management
      • Additional Multidisciplinary Management
      • Orthotics
      • Equipment Ideas
    • Occupational Therapy
      • Overview of Role
      • Home Adjustments
      • Mobility Aids and Wheelchairs
      • Support for Sitting
      • Mobile Arm Supports
      • Robotics
  • CPD Resources
  • Podcasts
    • Duchenne Muscular Dystrophy (DMD)
    • Inherited Neuropathies
    • Limb Girdle Muscular Dystrophy (LGMD)
    • Other
  • Search