Key Assessment Guide for BMD
Suggested Clinical Measures
- For subjects who are walking well use the NSAD and FVC. This will include two times tests (RFF and 10m walk / run). If you are short of time, use the SOFT to capture general functional ability. The TUG is a good way to capture home functioning.
- As a person becomes weaker, introduce the PUL 2.0 (If the entry item falls below a score of 6).
- For those no longer walking the EK2 captures important functional abilities as well as some aspects of activities of daily living.
- If you wish to use a PROM try the ACTIVLIM
Abbreviations
- NSAD – North Star Assessment for Limb Girdle Type Muscular Dystrophies
- SOFT – Summary of Function Test
- PUL 2.0 – Performance of Upper Limb 2.0
- EK2 – Egen Klassifikation
- PROM – Patient reported outcome measure
- FVC – Forced Vital Capacity
