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BMD-HUB Resource

July 27, 2023 by open_stcs

BMD Hub Central Recruitment Database – BMD-Hub

What is the BMD Hub?

The BMD Hub is a network of clinical care and research sites in the UK interested in and capable of delivering clinical trials in Becker Muscular Dystrophy (BMD). The BMD Hub is a project coordinated by the John Walton Muscular Dystrophy Research Centre at Newcastle University, funded by Edgewise Therapeutics, based on the DMD Hub model and collaborating with UK patient organisations with an interest in dystrophinopathies.

The BMD Hub aims to promote clinical trial readiness in BMD, by supporting sites in setting up and running clinical trials, facilitating a more equitable access to clinical research to patients with BMD, and addressing specific industry needs.

Through the creation of this network and addressing educational gaps among healthcare professionals, patients, and families, the BMD Hub endeavours to facilitate the implementation of care in BMD, providing an opportunity to develop standardised assessments and care guidelines.

Visit the BMD Hub for more information.

 

Filed Under: Uncategorized

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  • Who We Are
    • Our Team & Governance
    • Partnerships & Collaborations
  • Resources by Condition
    • Becker Muscular Dystrophy (BMD)
      • Intro to BMD
    • Congenital Muscular Dystrophy (CMD)
      • Intro to CMD
      • Key Management: CMD
      • Key Assessment Guide: CMD
    • Congenital Myasthenia Syndrome (CMS)
      • Intro to CMS
      • Key Management: CMS
      • Key Assessment Guide: CMS
    • Congenital Myopathies (CM)
      • Intro to CM
      • Key Management: CM
      • Key Assessment Guide: CM
    • Duchenne Muscular Dystrophy (DMD)
      • Intro to DMD
      • Key Management: DMD
      • Key Assessment Guide: DMD
    • General Neuromuscular Diseases (NMD)
      • Intro to NMD
      • Key Management: NMD
      • Key Assessment Guide: NMD
    • Glycogen Storage (GSD)
      • Intro to GSD
      • Key Management: GSD
      • Key Assessment Guide: GSD
    • Inherited Neuropathies
      • Intro to Inherited Neuropathies
      • Key Management: Inherited Neuropathies
      • Key Assessment Guide: Inherited Neuropathies
    • Limb Girdle Muscular Dystrophy (LGMD)
      • Intro to LGMD
      • Key Management: LGMD
      • Key Assessment Guide: LGMD
    • Myotonic Dystrophy (DM1)
      • Intro to DM1
      • Key Management of DM1
      • Key Assessment Guide: DM1
    • Spinal Muscular Atrophy (SMA)
      • Intro to SMA
      • Key Management: SMA
      • Key Assessment Guide: SMA
  • Assessment
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    • Timed Tests
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    • Additional Considerations
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